Web Resources


Dying Well. Dr. Ira Byock's website, includes resources on end-of-life care, grief and healing, and frequently asked questions about end-of-life experience and care. www.hospicefoundation.org

Hospice Foundation of America. How to locate and choose a hospice, paying for hospice care, tools for caregivers, etc. www.nahc.org

National Association for Home Care. Trade association representing interests and concerns of home care agencies and hospices, including regulatory, legislative, and educational resources. www.cancer.gov

National Cancer Institute. Complete listing of cancer treatment and ongoing clinical trials for the public and health care professionals. www.nfcacares.org

National Family Caregivers Association. Tips and tools for family caregivers and information on agencies that provide caregiver support. www.nhpco.org

National Hospice and Palliative Care Organization, formerly National Hospice Organization. A professional organization that provides a large variety of educational programs and helps find a hospice or palliative care program.


National Hospice and Palliative Care Organization (NHPCO); layperson's guide to advance care planning. Supported by grant from the Robert Wood Johnson Foundation; provides free advance directives for each state and toll-free, multi-language Helpline.. www.nih.gov/nia

National Institute on Aging. Publications and clinical trials on aging and disease; an on-line searchable database of more than 300 organizations that provide help to the elderly patient. www.projectgrace.org

Project GRACE. Guidelines for resuscitation and care at end-of-life. Includes an advance care plan document. www.epec.net

The EPEC Project. Education of healthcare professionals on the essential clinical competencies in palliative care. http://medicaldirective.org

The Medical Directive. Information on how to prepare a living will, with answers to common questions. www.uslivingwillregistry.com

U.S. Living Will Registry. National registry that stores advance directives for access by medical professionals (membership required). Provides advance directive forms for all 50 states.

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