References

Abboud MD, Cure J, Granger S, et al: Magnetic resonance angiography in children with sickle cell disease and abnormal transcranial Doppler ultrasonography findings enrolled in the STOP study Blood 103:2822-2826, 2004

Adams RJ: Lessons from the Stroke Prevention Trial in Sickle Cell Anemia (STOP) study J Child Neurol 15:344-349, 2000 Adams RJ, Ohene-Frempong K, Wang W: Sickle cell and the brain. Hematology 2001:31-46, 2001 Al-Kandari FA, Owunwanne A, Syed GM, et al: Regional cerebral blood flow in patients with sickle cell disease: study with single photon emission computed tomography. Ann Nucl Med 21:439-445, 2007 Americans With Disabilities Act of 1990, Pub. L. No.

101-336, 42 U.S.C. § 12101 et seq. Armstrong FD, Thompson RJ, Wang W, et al: Cognitive functioning and brain magnetic resonance imaging in children with sickle cell disease. Pediatrics 97:864870, 1996

Arnett J: Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 55:469-480, 2000 Barakat LP, Smith-Whitley K, Ohene-Frempong K: Treatment adherence in children with sickle cell disease: disease-related risk and psychosocial resistance factors. J Clin Psychol Med Settings 9:201-209, 2002 Barakat LP, Lutz MJ, Nicolaou DC, et al: Parental locus of control and family functioning in the quality of life of children with sickle cell disease. J Clin Psychol Med Settings 12:323-331, 2005 Barakat LP, Lash LA, Lutz MJ, et al: Psychosocial adaptation of children and adolescents with sickle cell disease, in Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach. Edited by Brown RT. New York, Oxford University Press, 2006, pp 471-495 Barakat LP, Schwartz LA, Simon K, et al: Negative thinking as a coping strategy mediator of pain and internalizing symptoms in adolescents with sickle cell disease. J Behav Med 30:199-208, 2007 Barbarin OA: Do parental coping, involvement, religiosity, and race identity mediate children's psychological adjustment to sickle cell disease? J Black Psychol 25:391-426, 1999 Barbarin OA, Christian M: The social and cultural context of coping with sickle cell disease, I: a review of bio medical and psychosocial issues. J Black Psychol 25:277-293, 1999 Barbarin OA, Whitten CF, Bonds SM: Estimating rates of psychosocial problems in urban and poor children with sickle cell anemia. Health Soc Work 19:112-119, 1994

Baskin ML, Collins MH, Brown F, et al: Psychosocial considerations in sickle cell disease (SCD): the transition from adolescence to young adulthood. J Clin Psychol Med Settings 5:315-341, 1998 Berkelhammer LD, Williamson AD, Sanford SD, et al: Neurocognitive sequelae of pediatric sickle cell disease: a review of the literature. Child Neuropsychol 13:120131, 2007

Berkovitch M, Papadouris D, Shaw D, et al: Trying to improve compliance with prophylactic penicillin therapy in children with sickle cell disease. Br J Clin Pharmacol 45:605-607, 1998 Bernaudin F, Verlhac S, Freard F, et al: Multicenter prospective study of children with sickle cell disease: radiographic and psychometric correlation. J Child Neu-rol 15:333-343, 2000 Boni LC, Brown RT, Davis PC, et al: Social information processing and magnetic resonance imaging in children with sickle cell disease. J Pediatr Psychol 26:309-319, 2001

Bonner MJ, Gustafson KE, Schumacher E, et al: The impact of sickle cell disease on cognitive functioning and learning. School Psychology Review 28:182-193, 1999

Britto MT, Garrett JM, Dugliss MAJ, et al: Risky behavior in teens with cystic fibrosis or sickle cell disease: a multicenter study. Pediatrics 101:250-256, 1998 Brown RT: Neurocognitive aspects of pediatric sickle cell disease. J Learn Disabil 26:33-45, 1993 Brown RT, Buchanan I, Doepke K, et al: Cognitive and academic functioning in children with sickle cell disease. J Clin Child Psychol 22:207-218, 1993a Brown RT, Kaslow NJ, Doepke K, et al: Psychosocial and family functioning in children with sickle cell syndrome and their mothers. J Am Acad Child Adolesc Psychiatry 32:545-553, 1993b Brown RT, Eckman J, Baldwin K, et al: Protective aspects of adaptive behavior in children with sickle cell syndromes. Child Health Care 24:205-222, 1995 Brown RT, Davis PC, Lambert R, et al: Neurocognitive functioning and magnetic resonance imaging in children with sickle cell disease. J Pediatr Psychol 25:503-513,2000a

Brown RT, Lambert R, Devine D, et al: Risk-resistance adaptation model for caregivers and their children with sickle cell syndromes. Ann Behav Med 22:158-169,2000b

Burghardt-Fitzgerald DC: Pain-behavior contracts: effective management of the adolescent in sickle-cell crisis. J Pediatr Nurs 4:320-324, 1989 Cepeda ML, Yang YM, Price CC, et al: Mental disorders in children and adolescents with sickle cell disease. South Med J 90:284-287, 1997 Chambless DL, Hollon SD: Defining empirically supported therapies. J Consult Clin Psychol 66:7-18, 1998

Charache S: Natural history of disease: adults, in Sickle Cell Disease: Basic Principles and Clinical Practice. Edited by Embury SH, Hebbel N, Mohandas N, et al. New York, Raven Press, 1994, pp 413-421 Charache S, Lubin B, Reid CD (eds): Management and therapy of sickle cell disease (NIH Pub. No. 89-2117). Washington, DC, National Institutes of Health, 1989 Charache S, Terrin ML, Moore RD, et al; Investigators of the Multicenter Study of Hydroxyurea in Sickle Cell Anemia: Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. N Engl J Med 332:1317-1322, 1995 Chen E, Cole SW, Kato PM: A review of empirically supported psychosocial interventions for pain and adherence outcomes in sickle cell disease. J Pediatr Psychol 29:197-209, 2004 Claster S, Vichinsky EP: Managing sickle cell disease. Br

Med J 327:1151-1155, 2003 Cohen AR: Sickle cell disease: new treatments, new questions. N Engl J Med 339:42-44, 1998 Compton SN, March JS, Brent D, et al: Cognitive-behavioral psychotherapy for anxiety and depressive disorders in children and adolescents: an evidence-based medicine review. J Am Acad Child Adolesc Psychiatry 43:930-959, 2004 Cozzi L, Tryon WW, Sedlacek K: The effectiveness of biofeedback-assisted relaxation in modifying sickle cell crises. Appl Psychophysiol Biofeedback 12:51-61, 1987

Craft S, Schatz J, Glauser TA, et al: Neuropsychologic effects of stroke in children with sickle cell anemia. J Pediatr 123:712-717, 1993 Day S, Brunson G, Wang W: A successful education program for parents of infants with newly diagnosed sickle cell disease. J Pediatr Nurs 7:52-57, 1992 DeBaun MR: Cognitive screening examinations for silent cerebral infarcts in sickle cell disease. Neurology 50:1678-1682, 1998 Delis DC, Kramer KH, Kaplan E, et al: Manual for the California Verbal Learning Test-Children's Version. San Antonio, TX, Psychological Corporation, 1994 Dinges DF, Whitehouse WG, Orne EC, et al: Self-hypnosis training as an adjunctive treatment in the management of pain associated with sickle cell disease. Int J Clin Exp Hypn 45:417-432, 1997 Earley CJ, Kittner SJ, Feeser BR, et al: Stroke in children and sickle-cell disease: Baltimore-Washington Cooperative Young Stroke Study. Neurology 51:169-176, 1998

Eaton ML, Have JS, Armstrong FD, et al: Hospitaliza-tions for painful episodes: association with school absenteeism and academic performance in children and adolescents with sickle cell anemia. Issues Compr Pediatr Nurs 18:1-9, 1995 Edwards CL, Scales MT, Loughlin C, et al: A brief review of the pathophysiology, associated pain, and psychosocial issues in sickle cell disease. Int J Behav Med 12:171-179, 2005 Ferster A, Vermylen C, Cornu G: Hydroxyurea for treatment of severe sickle cell anemia: a pediatric clinical trial. Blood 88:1960-1964, 1996

Ferster A, Tahriri P, Vermylen C: Five years of experience with hydroxyurea in children and young adults with sickle cell disease. Blood 97:3628-3632, 2001 Fowler MG, Johnson MP, Atkinson SS: School achievement and absence in children with chronic health conditions. J Pediatr 106:683-687, 1985 Fowler MG, Whitt JK, Lallinger RR, et al: Neuropsycho-logic and academic functioning of children with sickle cell anemia. J Dev Behav Pediatr 9:213-220, 1988 Gil KM, Abrams MR, Phillips G, et al: Sickle cell disease pain: relation of coping strategies to adjustment. J Consult Clin Psychol 57:725-731, 1989 Gil KM, Williams DA, Thompson RJ Jr, et al: Sickle cell disease in children and adolescents: the relation of child and parent pain coping strategies to adjustment. J Pediatr Psychol 16:643-663, 1991 Gil KM, Thompson RJ Jr, Keith BR, et al: Sickle cell disease pain in children and adolescents: change in pain frequency and coping strategies over time. J Pediatr Psychol 18:621-637, 1993 Gil KM, Wilson JJ, Edens JL, et al: Effects of cognitive coping skills training on coping strategies and experimental pain sensitivity in African American adults with sickle cell disease. Health Psychol 15:3-10, 1996 Gil KM, Edens JL, Wilson JJ, et al: Coping strategies and laboratory pain in children with sickle cell disease. Ann Behav Med 19:22-29, 1997a Gil KM, Wilson JJ, Edens JL, et al: Cognitive coping skills training in children with sickle cell disease pain. Int J Behav Med 4:364-377, 1997b Gil KM, Porter L, Ready J, et al: Pain in children and adolescents with sickle cell disease: an analysis of daily pain diaries. Children's Health Care 29:225-241, 2000 Gil KM, Anthony KK, Carson JW, et al: Daily coping practice predicts treatment effects in children with sickle cell disease. J Pediatr Psychol 26:163-173, 2001 Gil KM, Carson JW, Porter LS, et al: Daily stress and mood and their association with pain, health-care use, and school activity in adolescents with sickle cell disease. J Pediatr Psychol 28:363-373, 2003 Gustafson KE, Bonner MJ, Hardy KK, et al: Biopsycho-social and developmental issues in sickle cell disease, in Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach. Edited by Brown RT. New York, Oxford University Press, 2006, pp 431-448 Hagar RW, Vinchinsky EP: Major changes in sickle cell disease. Adv Pediatr 47:249-272, 2000 Hall H, Chiarucci K, Berman B: Self-regulation and assessment approaches for vaso-occlusive pain management for pediatric sickle cell anemia patients. Int J Psy-chosom 39:28-33, 1992 Hankins JS, Ware RE, Rogers ZR, et al: Long-term hy-droxyurea therapy for infants with sickle cell anemia: the HUSOFT extension study. Blood 106:2269-2275, 2005

Hariman LM, Griffith ER, Hurtig AL, et al: Functional outcomes of children with sickle-cell disease affected by stroke. Arch Phys Med Rehabil 72:498-502, 1991 Harrison MO, Edwards CL, Koenig HG, et al: Religiosity/ spirituality and pain in patients with sickle cell disease. J Nerv Ment Dis 193:250-257, 2005

Hazzard A, Celano M, Collins M, et al: Effects of STAR-BRIGHT World on knowledge, social support, and coping in hospitalized children with sickle cell disease and asthma. Child Health Care 31:69-86, 2002 Herron S, Bacak SJ, King A, et al: Inadequate recognition of education resources required for high-risk students with sickle cell disease. Arch Pediatr Adolesc Med 157:104, 2003 Hindmarsh PC, Brozovic M, Brook CG, et al: Incidence of overt and covert neurological damage in children with sickle cell disease. Postgrad Med J 63:751-753, 1987

Hocking MC, Lochman JE: Applying the transactional stress and coping model to sickle cell disorder and insulin-dependent diabetes mellitus: identifying psychosocial variables related to adjustment and intervention. Clin Child Fam Psychol Rev 8:221-246, 2005 Hoppe CC, Walters MC: Bone marrow transplantation in sickle cell anemia. Curr Opin Oncol 13:85-90, 2001 Hurtig AL, White LS: Psychosocial adjustment in children and adolescents with sickle cell disease. J Pediatr Psychol 11:411-427, 1986 Hurtig AL, Koepke D, Park KB: Relation between severity of chronic illness and adjustment in children and adolescents with sickle cell disease. J Pediatr Psychol 14:117-132, 1989 Ievers-Landis CE, Brown RT, Drotar D, et al: Situational analysis of parenting problems for caregivers of children with sickle cell syndromes. J Dev Behav Pediatr 22:169-178, 2001 Kaslow NJ, Collins MH, Rashid FL, et al: The efficacy of a pilot family psychoeducational intervention for pediatric sickle cell disease. Fam Syst Health 18:381-404, 2000

Kazak AE, Drotar D: Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: What have we learned? What do we need to know? J Pediatr Psychol 22:149165, 1997

Kell RS, Kliewer W, Erickson MT, et al: Psychological adjustment of adolescents with sickle cell disease: relations with demographic, medical, and family competence variables. J Pediatr Psychol 23:301-312, 1998 King AA, DeBaun MR, White DA: Need for cognitive rehabilitation for children with sickle cell disease and strokes. Expert Rev Neurother 8:291-296, 2008 Kinney TR, Helms RW, O'Branski EE, et al; Pediatric Hydroxyurea Group: Safety of hydroxyurea in children with sickle cell anemia: results of the HUG-KIDS study, a phase I/II trial. Blood 94:1550-1554, 1999 Kirkham FJ, Calamante F, Bynevelt M, et al: Perfusion magnetic resonance abnormalities in patients with sickle cell disease. Ann Neurol 49:477-485, 2001 Knight S, Singhal A, Thomas P, et al: Factors associated with lowered intelligence in homozygous sickle cell disease. Arch Dis Child 73:316-320, 1995 Koontz K, Short AD, Kalinyak K, et al: A randomized, controlled pilot trial of a school intervention for children with sickle cell anemia. J Pediatr Psychol 29:717, 2004

Kral MC, Brown RT, Nietert PJ, et al: Transcranial Dop-pler ultrasonography and neurocognitive functioning in children with sickle cell disease. Pediatrics 112:324331, 2003

Lemanek KL, Horwitz W, Ohene-Frempong K: A multi-perspective investigation of social competence in children with sickle cell disease. J Pediatr Psychol 19:443456,1994

Lewis HA, Kliewer W: Hope, coping, and adjustment among children with sickle cell disease: tests of mediator and moderator models. J Pain Symptom Manage 33:302-309, 2007 Locatelli F, Rocha V, Reed W, et al: Related umbilical cord blood transplantation in patients with thalassemia and sickle cell disease. Blood 101:2137-2143, 2003

McClellan CB, Schatz J, Sanchez C, et al: Validity of the Pediatric Quality of Life Inventory for youth with sickle cell disease. J Pediatr Psychol 33:1153-1162, 2008

Mitchell MJ, Lemanek K, Palermo TM, et al: Parent perspectives on pain management, coping, and family functioning in pediatric sickle cell disease. Clin Pediatr 46:311-319, 2007 Morgan SA, Jackson J: Psychological and social concomitants of sickle cell anemia in adolescents. J Pediatr Psychol 11:429-440, 1986 Moser FG, Miller ST, Bello JA, et al: The spectrum of brain MR abnormalities in sickle-cell disease: a report from the Cooperative Study of Sickle Cell Disease. AJNR Am J Neuroradiol 17:965-972, 1996 Moskowitz JT, Butensky E, Marmatz P, et al: Caregiving time in sickle cell disease: psychological effects in maternal caregivers. Pediatr Blood Cancer 48:64-71, 2007

Nassau JH, Drotar D: Social competence among children with central nervous system-related chronic health conditions: a review. J Pediatr Psychol 22:771-793, 1997

Nettles AL: Scholastic performance of children with sickle cell disease. J Health Soc Policy 5:123-140, 1994 Nietert PJ, Abboud MR, Silverstein MD, et al: Bone marrow transplantation versus periodic prophylactic blood transfusions in sickle cell patients with high risk for ischemic stroke: a decision analysis. Blood 95:30573064, 2000

Noll RB, Ris MD, Davies WH, et al: Social interactions between children with cancer or sickle cell disease and their peers: teacher ratings. J Dev Behav Pediatr 13:187-193, 1992

Noll RB, Vannatta K, Koontz K, et al: Peer relationships and emotional well-being of youngsters with sickle cell disease. Child Dev 67:423-436, 1996 Noll RB, Stith L, Gartstein MA, et al: Neuropsychological functioning of youths with sickle cell disease: comparison with non-chronically ill peers. J Pediatr Psychol 26:69-78, 2001 Noll RB, Reiter-Purtill J, Vannatta K, et al: Peer relationships and emotional well-being of children with sickle cell disease: a controlled replication. Child Neuropsy-chol 13:173-187, 2007 Oguz KK, Golay X, Pizzini FB, et al: Sickle cell disease: continuous arterial spin-labeling perfusion MR imaging in children. Radiology 227:567-574, 2003

Ohene-Frempong K, Weiner SJ, Sleeper LA, et al: Cerebrovascular accidents in sickle cell disease: rates and risk factors. Blood 91:288-294, 1998 Palermo TM, Schwartz L, Drotar D, et al: Parental report of health-related quality of life in children with sickle cell disease. J Behav Med 25:269-283, 2002 Panepinto JA: Health-related quality of life in sickle cell disease. Pediatr Blood Cancer 51:5-9, 2008 Panepinto JA, O'Mahar KM, DeBaun MR, et al: Validity of the Child Health Questionnaire for use in children with sickle cell disease. J Pediatr Hematol Oncol 26:574578, 2004

Panepinto JA, O'Mahar KM, DeBaun MR, et al: Health-related quality of life in children with sickle cell disease: child and parent perception. Br J Haematol 130:437444, 2005

Pavlakis SG, Prohovnik I, Piomelli S, et al: Neurologic complications of sickle cell disease. Adv Pediatr 36:247276, 1989

Peterson CC, Palermo TM, Swift E, et al: Assessment of psycho-educational needs in a clinical sample of children with sickle cell disease. Child Health Care 34:133148, 2005

Pinckney RB, Stuart GW: Adjustment difficulties of adolescents with sickle cell disease. J Child Adolesc Psychi-atr Nurs 16:5-12, 2004 Platt A, Eckman JR, Beasley JA, et al: Treating sickle cell pain: an update from the Georgia Comprehensive Sickle Cell Center. J Emerg Nurs 28:297-303, 2002 Platt OS, Brambilla DJ, Rosse WF, et al: Mortality in sickle cell disease: life expectancy and risk factors for early death. N Engl J Med 330:1639-1644, 1994 Powars DR, Conti PS, Wong WY, et al: Cerebral vasculop-athy in sickle cell anemia: diagnostic contribution of positron emission tomography. Blood 93:71-79, 1999 Powers SW, Mitchell MJ, Graumlich SE, et al: Longitudinal assessment of pain, coping, and daily functioning in children with sickle cell disease receiving pain management skills training. J Clin Psychol Med Settings 9:109-119, 2002 Puffer E, Schatz J, Roberts CW: The association of oral hydroxyurea therapy with improved cognitive functioning in sickle cell disease. Child Neuropsychol 13:142-154, 2007 Radcliffe J, Barakat LP, Boyd RC: Family systems issues in pediatric sickle cell disease, in Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach. Edited by Brown RT. New York, Oxford University Press, 2006, pp 496-513 Rehabilitation Act of 1973, Pub. L. No. 93-112, 29

U.S.C. § 6301 et seq. Ris MD, Grueneich R: Sickle cell disease, in Pediatric Neuropsychology. Edited by Yeates KO, Ris MD, Taylor HG. New York, Guilford, 2000, pp 320-335 Robinson JS, Kellett JM, Schatz J, et al: Faculty needs assessment for the educational management of youth with chronic health conditions. Paper presented at the Annual Meeting of the National Hemophilia Foundation, Nashville, TN, November 2001 Rodrigue JR, Streisand R, Banko C, et al: Social functioning, peer relations, and internalizing and externalizing problems among youths with sickle cell disease. Child Health Care 25:37-52, 1996 Schatz J: Brief report: academic attainment in children with sickle cell disease. J Pediatr Psychol 29:627-633, 2004

Schatz J, Puffer ES: Neuropsychological aspects of sickle cell disease, in Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsychosocial Approach. Edited by Brown RT. New York, Oxford University Press, 2006, pp 449-470 Schatz J, Roberts CW: Neurobehavioral impact of sickle cell disease in early childhood. J Int Neuropsychol Soc 13:933-943, 2007 Schatz J, Craft S, Koby M, et al: Neuropsychologic deficits in children with sickle cell disease and cerebral infarction: role of lesion site and volume. Child Neuropsychol 5:92-103,1999 Schatz J, Brown RT, Pascual JM, et al: Poor school and cognitive functioning with silent cerebral infarcts and sickle cell disease. Neurology 56:1109-1111, 2001 Schatz J, Finke RL, Kellett JM, et al: Cognitive functioning in children with sickle cell disease: a meta-analysis. J Pediatr Psychol 27:739-748, 2002a Schatz J, White DA, Moinuddin A, et al: Lesion burden and cognitive morbidity in children with sickle cell disease. J Child Neurol 17:891-895, 2002b Scott JP, Hillery CA, Brown ER: Hydroxyurea therapy in children severely affected with sickle cell disease. J Pediatr 128:820-828, 1996 Scott KD, Scott AA: Cultural therapeutic awareness and sickle cell anemia. J Black Psychol 25:316-335, 1999 Steen RG, Reddick WE, Mulhern RK, et al: Quantitative MRI of the brain in children with sickle cell disease reveals abnormalities unseen by conventional MRI. J Magn Reson Imaging 8:535-543, 1998 Steen RG, Xiong X, Mulhern RK, et al: Subtle brain abnormalities in children with sickle cell disease: relationship to blood hematocrit. Ann Neurol 45:279286, 1999

Steen RG, Miles MA, Helton KJ, et al: Cognitive impairment in children with hemoglobin SS sickle cell disease: relationship to MR imaging findings and hemato-crit. AJNR Am J Neuroradiol 24:382-389, 2003 Steen RG, Hunte M, Traipe E, et al: Brain T1 in young children with sickle cell disease: evidence of early abnormalities in brain development. Magn Reson Imaging 22:299-306, 2004 Steen RG, Fineberg-Buchner C, Hankins G, et al: Cognitive deficits in children with sickle cell disease. J Child Neurol 20:102-107, 2005 Swain NF, Mitchell MJ, Powers SW: Pain management of sickle cell disease, in Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease: A Biopsy-chosocial Approach. Edited by Brown RT. New York, Oxford University Press, 2006, pp 5 14-530 Tarazi RA, Grant ML, Ely E, et al: Neuropsychological functioning in preschool-age children with sickle cell disease: the role of illness-related and psychosocial factors. Child Neuropsychol 13:155-172, 2007 Tarnowski K, Brown RT: Psychological aspects of pediat-ric disorders, in Advanced Abnormal Child Psychol-

ogy. Edited by Hersen M, Ammerman R. Hillsdale, NJ, Lawrence Erlbaum, 2000, pp 131-152 Telfair J, Gardner MM: African American adolescents with sickle cell disease: support groups and psychological well-being. J Black Psychol 25:378-390, 1999 Telfair J, Myers J, Drezner S: Transfer as a component of the transition of adolescents with sickle cell disease to adult care: adolescent, adult, and parent perspectives. J Adolesc Health 15:558-565, 1994 Telfair J, Ehiri JE, Loosier PS, et al: Transition to adult care for adolescents with sickle cell disease: results of a national survey. Int J Adolesc Med Health 16:47-64, 2004

Thomas VN, Wilson-Barnett J, Goodhart F: The role of cognitive-behavioural therapy in the management of pain in patients with sickle cell disease. J Adv Nurs 27:1002-1009, 1998 Thompson RJ Jr, Gustafson KE: Adaptation to Chronic Childhood Illness. Washington, DC, American Psychological Association, 1996 Thompson RJ Jr, Gil KM, Burbach DJ, et al: Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. J Consult Clin Psychol 61:468-474, 1993 Thompson RJ Jr, Gil KM, Gustafson KE, et al: Stability and change in the psychological adjustment of mothers of children and adolescents with cystic fibrosis and sickle cell disease. J Pediatr Psychol 19:171-188, 1994 Thompson RJ Jr, Gustafson KE, Gil KM: Psychological adjustment of adolescents with cystic fibrosis or sickle cell disease and their mothers, in Adolescent Health Problems: Behavioral Perspectives. Edited by Wallander JL, Siegel LJ. New York, Guilford, 1995, pp 232-247

Thompson RJ Jr, Armstrong FD, Kronenberger WG, et al: Family functioning, neurocognitive functioning, and behavior problems in children with sickle cell disease. J Pediatr Psychol 24:491-498, 1999 Thompson RJ Jr, Gustafson KE, Bonner MJ, et al: Neuro-cognitive development of young children with sickle cell disease through three years of age. J Pediatr Psychol 27:235-244, 2002 Thornburg CD, Dixon N, Burgett S, et al: A pilot study of hydroxyurea to prevent chronic organ damage in young children with sickle cell anemia. Pediatr Blood Cancer 52:609-615, 2009

Trzepacz AM, Vannatta K, Gerhardt CA, et al: Emotional, social, and behavioral functioning of children with sickle cell disease and comparison peers. J Pediatr Hematol Oncol 26:642-648, 2004 Wagner JL, Connelly M, Brown RT, et al: Predictors of social anxiety in children and adolescents with sickle cell disease. J Clin Psychol Med Settings 11:243-252, 2004 Wallander JL, Varni JW: Adjustment in children with chronic physical disorders: programmatic research on a disability-stress-coping model, in Stress and Coping in Child Health. Edited by La Greca AM, Siegel LJ, Wallander JL, et al. New York, Guilford, 1992, pp 279-297 Wallander JL, Varni JW, Babani L, et al: Children with chronic physical disorders: maternal reports of their psychological adjustment. J Pediatr Psychol 13:197212,1988

Wallander JL, Varni JW, Babani L, et al: Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. J Pediatr Psychol 14:157-173, 1989 Walters MC, Storb R, Patience M, et al: Impact of bone marrow transplantation for symptomatic sickle cell disease: an interim report. Blood 95:1918-1924, 2000 Wang W, Enos L, Gallagher D, et al: Neuropsychologic performance in school-aged children with sickle cell disease: a report from the Cooperative Study of Sickle Cell Disease. J Pediatr 139:391-397, 2001a Wang WC, Wynn LW, Rogers ZR, et al: A two-year pilot trial of hydroxyurea in very young children with sickle-cell anemia. J Pediatr 139:790-796, 2001b Ware RE, Zimmerman SA, Sylvestre PB, et al: Prevention of secondary stroke and resolution of transfusional iron overload in children with sickle cell anemia using hydroxyurea and phlebotomy. J Pediatr 145:346-352, 2004

Wasserman AL, Wilimas JA, Fairclough DL, et al: Subtle neuropsychological deficits in children with sickle cell disease. Am J Pediatr Hematol Oncol 13:14-20, 1991 Wechsler D: Wechsler Abbreviated Scale of Intelligence.

San Antonio, TX, Psychological Corporation, 1999 Yerys BE, White DA, Salorio CF, et al: Memory strategy training in children with cerebral infarcts related to sickle cell disease. J Pediatr Hematol Oncol 25:495498, 2003

Zeltzer L, Dash J, Holland JP: Hypnotically induced pain control in sickle cell anemia. Pediatrics 64:533-536, 1979

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